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About Me

 I was born with CHD otherwise known as Childhood Heart Disease. Back when I was first diagnosed, it was co-arc of the aorta and sub aortic stenosis. I had my first heart cath at 6 weeks old and my first surgery at 2 years. I had several other procedures including 2 more heart surgeries and a "balloon" surgery by the time I was 13. At 14 I developed ventricular tachycardia. As an adult, they lumped my original heart problems together as Shones complex and I also developed heart block. 

My goal here is to share my story, feelings and thoughts. I hope I can help give hope to a parent of a child with CHD, give a voice to teens who are transitioning to the adult world and give insight to some doctors who wonder why CHD kids don't just go with the flow when it comes to treatment in the adult world. 

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Processing Time

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